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CAR-T Project – Understanding Patients’ & Caregivers’ Experiences


Help Lymphoma Coalition gain a better understanding of the CAR-T therapy experience of patients with lymphoma and CLL and their caregivers.

Lymphoma Coalition, and in turn its member organisations, is committed to bringing equity in lymphoma and CLL outcomes across borders. To do this, the current voices and values of patients must be accurately represented.

That is why we need to hear from you.

The CAR-T project objectives are:

  • Gain insights by hearing the patient’s voice on the disease’s impact on patients’ everyday life and activities.
  • Understanding caregivers’ and patients’ burden and needs.
  • Detection of potential access hurdles to medical care and healthcare gaps.

The information gathered will help us to be better equipped to advocate for change that will improve care globally and within countries, as well as provide you with the support you may need locally.

Who: Adult (age 18 and over) who has had or has cared for someone who has had CAR-T for lymphoma or CLL and received CAR T therapy

Where: For those treated in France, Germany, Switzerland, United Kingdom (UK), Or United States of America (USA)

What: Online survey / preliminary inquiry / interview if selected

Purpose of the online survey / preliminary inquiry

This survey collects information from patients and caregivers who have experienced CAR T that

will help guide future interviews of some patients and caregivers.

Patients and caregivers, visit the link to share your experience and insights today.

Patient  https://eu.research.net/r/CAR-T-Lymphoma

Caregiver  https://eu.research.net/r/CAR-T-Lymphoma-Caregivers

Completing this survey means that the respondent is willing to participate in the interview if selected. If you are interested in participating, please fill out the preliminary questions online and we will contact you with further information on the next steps.

Thank you very much for your interest in participating in this CAR-T study.

Lymphoma Coalition has contracted admedicum, an independent patient engagement company, based in Cologne, Germany, to help conduct this research. admedicum is dedicated to ensuring that the interests and experiences of patients are better integrated into research, development, and provision of health care.