Lymphoma Coalition has used the results from the Global Patient Survey on Lymphomas and CLL (GPS) to conduct and publish its own research on the patient experience.
It is imperative the issues raised globally by patients through the biennial survey are conveyed to the medical and research communities to improve care moving forward.
Research from the 2020 GPS
A cross-sectional study examining how knowledge of genetic and biomarkers affect the information and communication experiences of patients with CLL.
Presented at the International Workshop on Chronic Lymphocytic Leukaemia (iwCLL) 2021: Sept 17-20, 2021
Barriers to treatment for patients with lymphoma across Europe: Upper middle income versus high income countries
Presented at the European Society for Medical Oncology (ESMO) Congress 2021: Sep 16-21 2021
Abstract 844P Download the poster
A cross-sectional study on the global differences in information experiences and needs of patients with lymphoma and CLL. Hematological Oncology
Presented at the 16th International Conference on Malignant Lymphoma, Virtual Edition, 18-22 June 2021
39(S2), abstr 140. DOI: 10.1002/hon.52_2880
A cross-sectional study on global disparities in information experiences of patients with lymphoma/CLL.
Presented at the 57th American Society of Clinical Oncology (ASCO) 2021 Annual Meeting, 4-8 June 2021
A cross-sectional study of the psychosocial issues experienced by patients with lymphoma treated with stem cell transplant.
Presented at the European Bone Marrow and Transplant Group (EBMT) 47th Annual Meeting 14-17 March 2021
Comparative study of information needs and support experiences of patients with lymphoma: CAR T vs non-CAR T
Presented at the EHA-EBMT 3rd European CAR T-Cell Meeting, 4-6 February 2021 DOI: 10.13140/RG.2.2.10594.45765
A cross-sectional study examining the relationship between patient information level and patient participation in healthcare decisions and health management
Blood, 136 (Suppl 1). DOI: 10.1182/blood-2020-135837
Presented at the 62nd American Society of Hematology (ASH) Annual Meeting & Exposition, 5-8 December 2020
Research from the 2018 GPS
A cross-sectional study of unmet needs of lymphoma patients in patient-doctor communication.
Presented at the European Hematology Association Annual Congress EHA 2020 Virtual, 11 June-15 October 2020 Blood, 136 (Suppl 1). DOI: 10.1182/blood-2020-135837
Age-related lymphoma patient experience: Results from the Lymphoma Coalition 2018 Global Patient Survey.
Journal of Clinical Oncology, 38 (Suppl; abstr e20071). DOI: 10.1200/JCO.2020.38.15_suppl.e20071
Presented at the 56th American Society of Clinical Oncology (ASCO) Annual Meeting, 29 May-2 June 2020
A cross-sectional study examining the effects of patient information level on healthcare experience in 2 patient populations: Extranodal natural killer T-cell lymphoma (ENKTL) and Waldenstrom Macroglobulinemia (WM).
Blood, 134(Suppl 1), 3422. DOI: 10.1182/blood-2019-123479
Presented at the 61st American Society of Hematology (ASH) Annual Meeting & Exposition, Orlando, FL, USA, 7-10 December 2019
A cross-sectional study of unmet needs of lymphoma patients in patient-doctor communication: Follicular lymphoma (FL) and diffuse large B-cell lymphoma (DLBCL).
Blood, 134(Suppl 1), 4718. DOI: 10.1182/blood-2019-123413
Presented at 61st American Society of Hematology (ASH) Annual Meeting & Exposition, Orlando, FL, USA, 7-10 December 2019
A comparative analysis of CLL and DLBCL patients’ level of understanding after initial doctor’s appointment.
Presented at the XVIII International Workshop on CLL (iwCLL), Edinburgh, Scotland, 20-23 September 2019
A cross-sectional study examining how knowledge of lymphoma subtype affects the patient experience.
Hematological Oncology, 37(S2), 543-544. DOI: 10.1002/hon.230_2631
Presented at the 15th International Conference on Malignant Lymphoma, Lugano. Switzerland, 18-22 June
Correlation of lymphoma patient information level with healthcare experience
Blood, 132(supplement 1): 4782. DOI: 10.1182/blood-2018-99-115392
Presented at the 60th American Society of Hematology (ASH) Annual Meeting & Exposition, San Diego, CA, USA, 1-4 December 2018