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Patient Preferences for Telemedicine...
EHA2023_Abstract_Lymphoma-CoalitionDownload An Investigation into the Preferences of Patients Regarding the Use of Telemedicine Stemming from the COVID-19 Pandemic Abstract: PB2671Abstract Type: Publication OnlySession Title: Quality of Life and Palliative Care...
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Demographic Barriers to Clinical...
EBMT-2023-Annual-Meeting-PosterDownload A Cross-Sectional Study Examining Potential Demographic Barriers to Receiving Information on Clinical Trials in Relapsed/Refractory Patients Who Have Received Stem Cell Transplants (SCT) Authors:S. E. Kalloger¹, A. Watson², C....
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Barriers to Lymphoma Treatment...
AACRT-POSTER-802-5-1Download Identifying Factors that Affect Barriers to Lymphoma Treatment during the COVID-19 Pandemic Authors: A. Watson¹, S. Kaloger², C. Bace², A.L. Warwick²¹ Lymphoma Coalition, Research, Mississauga, ON, Canada² Lymphoma Coalition...
Read moreAge
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Impact of Ageing on...
ISHL12-Poster-2Download Impact of Ageing on the Survivorship Experiences of Patients with Hodgkin Lymphoma Authors: O. Bamigbola¹, C. Bates¹, and L. Warwick²¹ Lymphoma Coalition, Research, Mississauga, ON, Canada² Lymphoma Coalition, Management,...
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Age-Related Differences in Information...
1929-1Download Age-Related Differences in the Informational Experiences and Needs of Patients with Lymphoma Results from the 2020 Lymphoma Coalition Global Patient Survey Authors: O. Bamigbola¹ and L. Warwick¹¹ Lymphoma Coalition,...
Read moreBarriers to Treatment
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Patient Preferences for Telemedicine...
EHA2023_Abstract_Lymphoma-CoalitionDownload An Investigation into the Preferences of Patients Regarding the Use of Telemedicine Stemming from the COVID-19 Pandemic Abstract: PB2671Abstract Type: Publication OnlySession Title: Quality of Life and Palliative Care...
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Barriers to Lymphoma Treatment...
AACRT-POSTER-802-5-1Download Identifying Factors that Affect Barriers to Lymphoma Treatment during the COVID-19 Pandemic Authors: A. Watson¹, S. Kaloger², C. Bace², A.L. Warwick²¹ Lymphoma Coalition, Research, Mississauga, ON, Canada² Lymphoma Coalition...
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Impact of National Health...
ESMO 2022 posterDownload A Comparative Study of the Impact of Countries’ Health Expenditure on the Diagnosis Experiences of Patients with Lymphoma and CLL in Europe Topic: Quality of life, palliative...
Read moreCAR-T
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CAR-T
Understanding CAR-T 1. What is immunotherapy? Immunotherapy, or more specifically cancer immunotherapy, is a type of treatment that helps the body's immune system fight cancer. The body's immune system fights...
Read moreCAR-T Research
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Side-Effects in Relapsed Large...
2421Download An Examination of Aggregate Side-Effects Mapped to Therapies Experienced by Patients with Relapsed Large B-Cell Lymphomas An Analysis from the Lymphoma Coalition’s 2022 Global Patient Survey Authors:S. E. Kalloger¹,...
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Demographic Barriers to Clinical...
EBMT-2023-Annual-Meeting-PosterDownload A Cross-Sectional Study Examining Potential Demographic Barriers to Receiving Information on Clinical Trials in Relapsed/Refractory Patients Who Have Received Stem Cell Transplants (SCT) Authors:S. E. Kalloger¹, A. Watson², C....
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Side-Effect Incidence in CAR-T...
CART-2024_Poster-LC-FINALDownload An Assessment: Side-Effect Incidence for Those Treated with CAR-T vs. Other Treatments in the Relapsing/ Refractory Disease Authors:M. Butcharts, S. Kaingage, S. Alexander, A. Watson, L. WarwickLymphoma Coalition, Mississauga,...
Read moreCareers
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Careers
Join the Lymphoma Coalition Team At Lymphoma Coalition, we are dedicated to making a positive impact on the lives of individuals affected by lymphoma, including chronic lymphocytic leukaemia (CLL). When...
Read moreClinical Trials
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Patient Experience and Doctor...
3047Download A Comparative Analysis of Patient Experience and Patient–Doctor Communication in Patients with Lymphoma and CLL: Clinical Trials versus Non-Clinical Trials Authors: O. Bamigbola¹ and L. Warwick²¹ Lymphoma Coalition, Research,...
Read moreCLL
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Unaddressed Side-Effects and Confidence...
EHA2025-Poster-LC-finalMay26 (1)Download The Effect of Unaddressed Side Effects on Patient-Reported Confidence in Care Plans Among Patients with Lymphoma or Chronic Lymphocytic Leukemia (CLL)Authors: S. Kaloger, N. Bolaños, S. Sajkowski, A....
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Therapeutic Utilisation in Lymphoma/CLL...
Lymphoma-Coalition-EBMT-2024-Annual-Meeting-Poster-FINALDownload Therapeutic Utilisation Across the Spectrum of Lymphoma and Chronic Lymphocytic Leukaemia An Analysis of the Lymphoma Coalition’s 2022 Global Patient Survey Authors: Steve Kalloger¹, Natacha Bolaños¹, Amanda Watson¹, Shawn...
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Predicting Treatment Related Fatigue...
Lymphoma-Coalition-NCCN-poster-finalDownload Predicting Treatment-Related Fatigue in the Context of Lymphoma and Chronic Lymphocytic Leukemia Authors: Steve Kalloger¹, Amanda Watson¹, Shawn Sajkowski¹, Natacha Bolaños², Lorna Warwick²¹ Department of Research & Information, Lymphoma...
Read moreCommunication & Decision-Making
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Variances In Patient-Reported Experiences...
Variances In Patient-Reported Experiences with Shared Decision-MakingDownload https://youtu.be/S2MdFHXQVGM Variances in Patient-Reported Experiences with Shared Decision-Making by Biological Sex in Patients with DLBCL – An Analysis from the Lymphoma Coalition 2024...
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Patient Experience and Doctor...
3047Download A Comparative Analysis of Patient Experience and Patient–Doctor Communication in Patients with Lymphoma and CLL: Clinical Trials versus Non-Clinical Trials Authors: O. Bamigbola¹ and L. Warwick²¹ Lymphoma Coalition, Research,...
Read moreCOVID
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Patient Preferences for Telemedicine...
EHA2023_Abstract_Lymphoma-CoalitionDownload An Investigation into the Preferences of Patients Regarding the Use of Telemedicine Stemming from the COVID-19 Pandemic Abstract: PB2671Abstract Type: Publication OnlySession Title: Quality of Life and Palliative Care...
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Barriers to Lymphoma Treatment...
AACRT-POSTER-802-5-1Download Identifying Factors that Affect Barriers to Lymphoma Treatment during the COVID-19 Pandemic Authors: A. Watson¹, S. Kaloger², C. Bace², A.L. Warwick²¹ Lymphoma Coalition, Research, Mississauga, ON, Canada² Lymphoma Coalition...
Read moreDoctor–Patient Communication
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Patient Experience and Doctor...
3047Download A Comparative Analysis of Patient Experience and Patient–Doctor Communication in Patients with Lymphoma and CLL: Clinical Trials versus Non-Clinical Trials Authors: O. Bamigbola¹ and L. Warwick²¹ Lymphoma Coalition, Research,...
Read moreEffects of Lymphoma
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Signs & Symptoms
There are currently no screening tests for lymphomas. The signs and symptoms of lymphoma can often be mistaken for other less serious illnesses, like the flu. Many patients delay going to the...
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Psychosocial Effects
Psychological Impact of Lymphoma (A4) [icon name="arrow-circle-right" prefix="fas"] Psychological Impact of Lymphoma (Letter) [icon name="arrow-circle-right" prefix="fas"] Psychological Impact of Lymphoma In the 2020 and 2022 surveys, over three-quarters of patients...
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Fatigue
Cancer-Related Fatigue CRF is defined as a 'distressing, persistent, subjective sense of physical, emotional, and/or cognitive tiredness or exhaustion related to cancer or cancer treatment that is not proportional to...
Read moreFatigue
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Treatment Impact on Fatigue...
321712_2_merged_1717013487Download Cancer related fatigue and the additive effect of treatment in the context of lymphoma:An analysis of the Lymphoma Coalition’s 2022 Global Patient Survey Running TitleCRF in Lymphoma Patients and...
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Predicting Treatment Related Fatigue...
Lymphoma-Coalition-NCCN-poster-finalDownload Predicting Treatment-Related Fatigue in the Context of Lymphoma and Chronic Lymphocytic Leukemia Authors: Steve Kalloger¹, Amanda Watson¹, Shawn Sajkowski¹, Natacha Bolaños², Lorna Warwick²¹ Department of Research & Information, Lymphoma...
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Patient Reported Fatigue in...
Poster-ASH-Fatigue-3537-2Download Patient Reported Experience with Fatigue, a Cross-Sectional Study Examining Indolent and Aggressive Lymphomas Authors: C.D. Bates, O.A. Bamigbola, L.E. WarwickAffiliation: Department of Research & Information, Lymphoma Coalition, Mississauga, ON,...
Read moreGlobal Patient Survey
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Patient Perspective Psychosocial Impact...
AACR-2025-PosterDownload Patient perspective on the prevalence and severity of adverse psychosocial outcomes amongst those treated for lymphoma or chronic lymphocytic leukemia - an analysis of the Lymphoma Coalition’s 2024 Global...
Read moreHealth Literacy
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Information Disclosure and Health...
ESMO-poster-final-1Download A Cross-Sectional Examination of Information Disclosure and Health Literacy Amongst Patients with Lymphoma Authors: SE Kalloger¹, A Watson¹, S Sajkowski¹, N Bolaños², L Warwick²¹Department of Research & Information, Lymphoma...
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Health Literacy in Chronic...
iwCLL-poster-2023-Lymphoma-CoalitionDownload An Examination of Health Literacy Amongst Patients with Chronic Lymphocytic Leukemia A Study from The Lymphoma Coalition Global Patient Survey 2022 Authors: Steve E. Kalloger¹, Shawna Warwick²¹Department of Research...
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Information needs of lymphoma...
Understanding-the-information-needs-of-lymphoma-and-CLL-patients-A-comparison-of-Asia-Pacific-and-EuropeDownload Understanding the information needs of lymphoma and CLL patients: A comparison of AsiaPacific and Europe. Cherie D. Bates, Amanda Watson, Lorna Warwick; Lymphoma Coalition Organization, Mississauga, ON,Canada; Lymphoma Coalition,...
Read moreHodgkin Lymphoma
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Impact of Ageing on...
ISHL12-Poster-2Download Impact of Ageing on the Survivorship Experiences of Patients with Hodgkin Lymphoma Authors: O. Bamigbola¹, C. Bates¹, and L. Warwick²¹ Lymphoma Coalition, Research, Mississauga, ON, Canada² Lymphoma Coalition, Management,...
Read moreLC Research
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Variances In Patient-Reported Experiences...
Variances In Patient-Reported Experiences with Shared Decision-MakingDownload https://youtu.be/S2MdFHXQVGM Variances in Patient-Reported Experiences with Shared Decision-Making by Biological Sex in Patients with DLBCL – An Analysis from the Lymphoma Coalition 2024...
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Evolving Patient-Reported Value of...
Evolving Patient-Reported Value of Treatment Attributes in Follicular Lymphoma Insights From the Lymphoma Coalition 2024 GPSDownload https://youtu.be/g2rrElHXBoo Evolving Patient-Reported Value of Treatment Attributes in Follicular Lymphoma: Insights From the Lymphoma...
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Recent Research Publication: Bridging...
Published article: “Bridging gaps in clinical trial accessibility and reimbursement for large B-cell lymphoma therapies across Europe,” in HemaSphere. Read the Full Article Here This publication examines the unmet need...
Read moreLC Updates
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FOLC DECEMBER 2025
Latest News Across LC World Lymphoma Awareness Day 2025 - Campaign Highlights The 2025 WLAD campaign reached an impressive 10,238,197 individuals, creating meaningful connections and fostering awareness worldwide. The campaign URL; worldlymphomaawarenessday.org...
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Kick-Off of a New...
Pictured: Lymphoma Coalition and GELL leaders gathered at ASH 2025 At the recent meeting of the American Society of Hematology (ASH), Lymphoma Coalition held the official kick-off meeting for a new...
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Lymphoma Coalition Announces Three...
December 4, 2025 – Lymphoma Coalition (LC), a global network dedicated to improving outcomes for people living with lymphoma, is pleased to announce the appointment of three new members to its Board...
Read moreMember News
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GCCN event on Sustaining...
To be held virtually on Saturday, 19 March, throughout the day. Join us at our next GCCN event on Sustaining Patient Advocacy Post-COVID, where we will hear 3 perspectives on...
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The The EBMT and...
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Karen Van Rassel Leadership...
The Karen Van Rassel Leadership Award was created through a generous grant from Celgene following Karen's retirement, to honour her commitment to Lymphoma Coalition and tremendous achievements in the global blood cancer...
Read moreN/A
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Published article: “Bridging gaps in clinical trial accessibility and reimbursement for large B-cell lymphoma therapies across Europe,” in HemaSphere. Read the Full Article Here This publication examines the unmet need...
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Strategic Priorities
Lymphoma Coalition’s new 5-year strategic plan is a roadmap to strengthen our impact and advance a better future for everyone impacted by lymphoma, including chronic lymphocytic leukaemia (CLL). Grounded in...
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Lymphoma Patient Charter
Patient Charter Usage Guide[icon name="arrow-circle-right" prefix="fas"] Patient Charter Key Changes & Advancements [icon name="arrow-circle-right" prefix="fas"] The Lymphoma Patient Charter defines a global standard for excellence in lymphoma care. Originally developed...
Read morePast Newsletters
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JUNE 2025 - In...
Dear Members, Welcome to the June edition of the monthly LC newsletter! This month's issue includes key updates about various initiatives, details regarding upcoming events, along with highlights of recent...
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MAY 2025 - In...
Dear Members, Welcome to the May edition of the monthly LC newsletter! This month's issue includes key updates about various initiatives, details regarding upcoming events, along with highlights of recent...
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MARCH 2025 - In...
Dear Members, Welcome to the March edition of the monthly LC newsletter! This month's issue includes key updates about various initiatives, details regarding upcoming events, along with highlights of recent...
Read moreQuality of Life
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Side-Effects and Health-Related Quality...
NCCN-2025-posterDownload Mapping Patient Reported Side-Effect Incidence to Degradation of Health-Related Quality of Life Dimensions in Lymphoma and Chronic Lymphocytic Leukemia A study from the Lymphoma Coalition’s 2024 Global Patient Survey...
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Impact of Ageing on...
ISHL12-Poster-2Download Impact of Ageing on the Survivorship Experiences of Patients with Hodgkin Lymphoma Authors: O. Bamigbola¹, C. Bates¹, and L. Warwick²¹ Lymphoma Coalition, Research, Mississauga, ON, Canada² Lymphoma Coalition, Management,...
Read moreRelapse/Refractory
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Demographic Barriers to Clinical...
EBMT-2023-Annual-Meeting-PosterDownload A Cross-Sectional Study Examining Potential Demographic Barriers to Receiving Information on Clinical Trials in Relapsed/Refractory Patients Who Have Received Stem Cell Transplants (SCT) Authors:S. E. Kalloger¹, A. Watson², C....
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Psychosocial Experiences in Relapsed/Refractory...
Abstract_96-Psychosocial-CART-vs-non-CARTDownload A Cross-Sectional Study of Psychosocial Experiences in Patients with Relapsed/Refractory Diffuse Large B Cell (DLBCL) Who Received CAR-T Compared to Other Therapies Authors: C. Bates¹, S. Kalloger¹, A. Watson¹,...
Read moreResearch
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Global Report Cards
2022 Report Card (Letter) [icon name="arrow-circle-right" prefix="fas"] 2022 Report Card (A4) [icon name="arrow-circle-right" prefix="fas"] 2022 Report Card on Lymphomas:Spotlight on the Experience of Patients with Indolent Lymphomas This report focuses...
Read moreShared Decision-Making
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Variances In Patient-Reported Experiences...
Variances In Patient-Reported Experiences with Shared Decision-MakingDownload https://youtu.be/S2MdFHXQVGM Variances in Patient-Reported Experiences with Shared Decision-Making by Biological Sex in Patients with DLBCL – An Analysis from the Lymphoma Coalition 2024...
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Patient Experience and Doctor...
3047Download A Comparative Analysis of Patient Experience and Patient–Doctor Communication in Patients with Lymphoma and CLL: Clinical Trials versus Non-Clinical Trials Authors: O. Bamigbola¹ and L. Warwick²¹ Lymphoma Coalition, Research,...
Read moreSide Effects
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Recent Research Publication: Addressing...
Read the full article on The Lancet Haematology (free access until 22 April 2025):🔗 https://bit.ly/3Xq6mfO The article is also available as a PDF, simply click the button below to download...
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Unaddressed Side-Effects and Confidence...
EHA2025-Poster-LC-finalMay26 (1)Download The Effect of Unaddressed Side Effects on Patient-Reported Confidence in Care Plans Among Patients with Lymphoma or Chronic Lymphocytic Leukemia (CLL)Authors: S. Kaloger, N. Bolaños, S. Sajkowski, A....
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Side-Effects and Health-Related Quality...
NCCN-2025-posterDownload Mapping Patient Reported Side-Effect Incidence to Degradation of Health-Related Quality of Life Dimensions in Lymphoma and Chronic Lymphocytic Leukemia A study from the Lymphoma Coalition’s 2024 Global Patient Survey...
Read moreSubtype-Specific
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Evolving Patient-Reported Value of...
Evolving Patient-Reported Value of Treatment Attributes in Follicular Lymphoma Insights From the Lymphoma Coalition 2024 GPSDownload https://youtu.be/g2rrElHXBoo Evolving Patient-Reported Value of Treatment Attributes in Follicular Lymphoma: Insights From the Lymphoma...
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EHA2025-Poster-LC-finalMay26 (1)Download The Effect of Unaddressed Side Effects on Patient-Reported Confidence in Care Plans Among Patients with Lymphoma or Chronic Lymphocytic Leukemia (CLL)Authors: S. Kaloger, N. Bolaños, S. Sajkowski, A....
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Therapeutic Utilisation in Lymphoma/CLL...
Lymphoma-Coalition-EBMT-2024-Annual-Meeting-Poster-FINALDownload Therapeutic Utilisation Across the Spectrum of Lymphoma and Chronic Lymphocytic Leukaemia An Analysis of the Lymphoma Coalition’s 2022 Global Patient Survey Authors: Steve Kalloger¹, Natacha Bolaños¹, Amanda Watson¹, Shawn...
Read moreSubtypes
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Peripheral T cell lymphoma...
Peripheral T-Cell Lymphoma Infographic [icon name="arrow-circle-right" prefix="fas"] PTCL is a group of aggressive (fast-growing) lymphomas that develop from mature T lymphocytes (T cells) and natural killer (NK) cells. The term ‘peripheral’...
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Waldenström Macroglobulinemia (WM)
Waldenström Macroglobulinemia Report 2016 [icon name="arrow-circle-right" prefix="fas"] Waldenström Macroglobulinemia (WM) / Lymphoplasmacytic lymphoma (LPL) WM is a cancer of the B lymphocytes (B cells) and is subtype of LPL. WM...
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Marginal Zone Lymphoma (MZL)
Marginal Zone Lymphoma Report [icon name="arrow-circle-right" prefix="fas"] Marginal Zone Lymphoma Infographic [icon name="arrow-circle-right" prefix="fas"] Marginal zone lymphoma (MZL) Marginal zone lymphoma (MZL) is a group of cancers of the B...
Read moreSurvivorship
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Impact of Ageing on...
ISHL12-Poster-2Download Impact of Ageing on the Survivorship Experiences of Patients with Hodgkin Lymphoma Authors: O. Bamigbola¹, C. Bates¹, and L. Warwick²¹ Lymphoma Coalition, Research, Mississauga, ON, Canada² Lymphoma Coalition, Management,...
Read moreTherapies
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CAR-T
Understanding CAR-T 1. What is immunotherapy? Immunotherapy, or more specifically cancer immunotherapy, is a type of treatment that helps the body's immune system fight cancer. The body's immune system fights...
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Clinical Trials
The development of new drugs saves lives and so LC believes that clinical trials are a necessity and in many cases an important treatment option for lymphoma patients. However, between...
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Biosimilars
A biosimilar medicine is a version of a biologic drug that is already authorised for sale. A biologic is also known as a reference or an originator drug. Biosimilars have no clinical difference with a reference drug, meaning that they are...
Read moreTreatment
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Side-Effects in Relapsed Large...
2421Download An Examination of Aggregate Side-Effects Mapped to Therapies Experienced by Patients with Relapsed Large B-Cell Lymphomas An Analysis from the Lymphoma Coalition’s 2022 Global Patient Survey Authors:S. E. Kalloger¹,...
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Recent Research Publication: Addressing...
Read the full article on The Lancet Haematology (free access until 22 April 2025):🔗 https://bit.ly/3Xq6mfO The article is also available as a PDF, simply click the button below to download...
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Unaddressed Side-Effects and Confidence...
EHA2025-Poster-LC-finalMay26 (1)Download The Effect of Unaddressed Side Effects on Patient-Reported Confidence in Care Plans Among Patients with Lymphoma or Chronic Lymphocytic Leukemia (CLL)Authors: S. Kaloger, N. Bolaños, S. Sajkowski, A....
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Side-Effects and Health-Related Quality...
NCCN-2025-posterDownload Mapping Patient Reported Side-Effect Incidence to Degradation of Health-Related Quality of Life Dimensions in Lymphoma and Chronic Lymphocytic Leukemia A study from the Lymphoma Coalition’s 2024 Global Patient Survey...
Read moreUkraine Conflict Response
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Ukraine Conflict Response Update
Shortly after the armed conflict started on 24 February 2022, LC reached out to both its member organisations in Ukraine and Russia to see how this was impacting their activities...
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A World of Thanks...
We are all deeply concerned about the humanitarian crisis in Ukraine. Lymphoma Coalition continues to do all we can to support the people in Ukraine, surrounding countries and across Europe...
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Ukraine Conflict Response
Допомога для пацієнтів з лімфомою та ХЛЛ,що покидають Україну Help for patients with Lymphoma & CLL in and leaving Ukraine A Message from the Lymphoma Coalition Board of Directors Lymphoma...
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