Policy & Advocacy: Driving Change Through Evidence and Action
Policy interventions and advocacy actions are fundamental to helping ensure that patients access the care, treatment and support they need regardless of where they live. Lymphoma Coalition’s Policy & Advocacy work exists to transform evidence into action. Policies shape how care is delivered, and advocacy ensures the patient voice drives those decisions. By combining data, insights, and lived experiences, LC works to close equity gaps and influence healthcare systems to deliver timely, innovative, and patient-centred care.
Policy Framework
Evidence
Evidence
Purpose
Ensure policy actions are credible, strategic, and aligned with key priorities.
Cross-Cutting Principles
Consistency
Clarity
Validity
Inputs
- Global Patient Survey on Lymphoma & CLL
- Validated research
- Credible research and clinical data
Activity
Policy influence by generating evidence, translating research, and communicating data to inform system-level change.
Impact
Evidence-informed policy action driven by credible advocacy and increased awareness, engagement and mobilisation.
Outputs / Outcomes
Stronger, evidence-informed influence on policy.
Equity
Equity
Purpose
Ensure policy priorities are inclusive, relevant, and responsive.
Cross-Cutting Principles
Actionability
Equity
Inputs
- Lymphoma Patient Charter
- Insights on inequities across healthcare
- Credible research and health systems data
Activity
Equity-focused policies that remove systemic barriers and ensure consistent lymphoma care for all patient populations.
Impact
Improved access to care and treatment, leading to better patient experience, outcomes, and standards of care.
Outputs / Outcomes
More equitable, high-quality lymphoma care policy.
Impact
Impact
Purpose
Ensure policy solutions deliver measurable and sustainable policy change that improve patient outcomes.
Cross-Cutting Principles
Impact
Benefit
Inputs
- Lymphoma Coalition 2025-2030 Strategy
- Health system performance metrics and evaluation
- Credible research and health systems data
Activity
Impact-driven policy analysis, prioritisation, and positioning to achieve policy outcomes.
Impact
Enhanced health system performance through more responsive services, system-level reform, and greater value and accountability.
Outputs / Outcomes
Measurable system-level policy change.
Start to explore Policy & Advocacy Resources Here:
Affordability, Accessibility, and Equity of Essential Medicines for Lymphoma and CLL
Equitable access to essential medicines is a cornerstone of health system. Yet despite advances in lymphoma and CLL treatment, many medicines remain inaccessible or unaffordable for patients around the world.
This report examines the challenges affecting the affordability, accessibility and availability of essential medicines for lymphoma and CLL, including regulatory hurdles, drug shortages, inconsistent pricing, fragmented policies and limited medicine availability across countries and regions.
It also explores the rapidly evolving lymphoma treatment landscape, highlighting how innovations in targeted therapies, bispecific antibodies and CAR T-cell therapies are transforming care while also creating new challenges related to affordability and equitable access.
Equitable access to essential medicines requires policies that address not only affordability, but also ensure consistent, fair and sustainable access to medicines for all. This includes aligning essential medicines with clinical practice guidelines and streamlining regulatory and affordability policies to help ensure safe, effective and quality medicines remain consistently available and accessible.
Impact of Patient Organisation Contributions to Modern Health Systems
Health systems are under increasing pressure to deliver equitable, high-quality care while managing rising demand and constrained resources. Patient organisations are playing a critical role in addressing these challenges.
This report examines how their contributions help improve patient care, access and outcomes by identifying unmet needs, generating patient experience data, and translating lived experience into insights that inform decision making across care, research and policy.
Recognising the role of patient organisations is essential to strengthening health system performance and ensuring care reflects real world needs and experiences.
