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Privacy Policy

Conditional Use of this Site
By entering this website, you agree to be bound by the policies and terms and conditions posted in this site.

Privacy Policy
At Lymphoma Coalition (LC), we recognize the importance of privacy and are committed to maintaining the accuracy, confidentiality and security of your personal information. This privacy policy describes the personal information that LC collects, how we manage and protect that information and the circumstances under which we may disclose that information.

LC’s privacy policy is based upon the requirements of Canadian laws governing the collection, use, disclosure and protection of personal information.

LC will also take all reasonable steps to process information about you in accordance with the EU General Data Protection Regulation (GDPR) 2018.

Should we ask you to provide certain information, you can be assured that it will only be used in accordance with this privacy policy. If you have any queries about this privacy policy, please email us.

About LC
LC is a worldwide network of lymphoma patient groups, with the express purpose of facilitating lymphoma patient organisations around the world to form a community that could support one another’s efforts in helping patients with lymphoma receive the care and support needed. LC is a not-for-profit organisation.

Our global office is located at:

8 Stavebank Road N, Unit #401

Mississauga ON L5G 2T4.

Personal Information Collection by LC
Personal information is any information about an identifiable individual, other than an individual’s business title or business contact information. Personal information (e.g., name, address, age, credit card information, banking information) does not include information that cannot be associated with or tracked back to a specific individual. Information that is publicly available, such as a telephone book listing, is also not considered to be personal information.

The information LC collects is the minimum amount we need to demonstrate and maintain a service.

This could include:

  • Full name
  • Contact information, such as email address, postal address, telephone number, profession and place of work should you provide it.
  • IP address

Your provision of personal information to LC means that you agree and consent that we may collect, use and disclose your personal information in accordance with this privacy policy. If you do not agree with these terms, please do not provide any personal information to LC. Failure to provide your personal information to LC may prevent us from offering you the services and/or programs you have requested. We will discuss the impacts of withdrawal of consent with you at that time.

  • Members

You may fill in an application form to join LC as a member organisation. When using the form, you will be asked to provide personal data such as your name and email address and information about your organisation. If you provide personal data about other authorised representatives, we rely on you to inform those people that you are providing their personal data to LC and to make them aware of this Privacy Policy. The contacts you provide will be signed up to our e-communications that you will be able to unsubscribe from at any time. Also note that some information will be published and viewable on the site, such as Organisation name and contact information.

  • Surveys

Occasionally, we conduct surveys via third party tools (such as SurveyMonkey). In addition to your feedback, you may be asked to provide personal data. The type of data collected depends on the survey. LC will use the data only as indicated in the survey.

We also gather information about the use of our website. When you browse through www.lymphomacoalition.org (“website”), our servers automatically log information about visits to this website in the normal course of establishing and maintaining web connections. The server logs record statistical information, such as visitors’ IP addresses, time and duration of visit, and websites visited. LC collects this information for statistical, anonymous analysis so that we may continuously improve our website content.

LC generally collects your personal information directly from you and only with your consent. In addition, LC will not collect or use personal information about you from a third party without your express consent. If the purpose for using your personal information changes from the time since such consent was obtained, LC will advise you of this purpose before such use or disclosure.

Accuracy of Information
LC aims to ensure that any personal information provided is accurate, complete and current as required for the purposes for which the information is used. If you believe any information we are holding about you is incorrect or incomplete, please write or email us as soon as possible. We will promptly correct any information found to be incorrect.

LC Use of Personal Information
LC uses your information to provide copies of our newsletter, update you with information regarding changes to our website, and inform you of events or news items that may be of interest to you.

LC may also use your personal information to permit access to the Global Information on the website. In addition, we use it to control and administer access to and use of the website and its features to maintain the security of our website and verify and control access to your account to administer personalized settings and content depending on your user profile and the options you have selected.

LC may also use your information for internal research purposes.

LC keeps personal information only as long as it is required for the reasons it was collected. The length of time we retain information varies, depending on the program, service or event and the nature of the information. When your personal information is no longer required for LC purposes, the information is either physically destroyed or deleted.

Disclosure of Personal Information
LC shares personal information only with employees or authorised agents of LC who require such information to fulfil their job requirements.

Personal information may also be transferred between the operator of the website and third-party agents or service providers engaged to provide web management, hosting or other services on our behalf in connection with the website.

LC takes reasonable measures to ensure that your personal information that may be collected, used, disclosed or otherwise processed by these employees, third-party agents or service providers on our behalf is protected and not used or disclosed for purposes other than as directed by LC, subject to legal requirements applicable to those organisations.

LC may generally disclose personal information as necessary to meet legal and regulatory, insurance, audit, processing and security requirements. LC may otherwise disclose personal information with your consent, or as permitted or required by law.

Data Security
LC uses reasonable measures to protect personal information.

Where LC uses third parties to process your information we ensure they have robust security and clearly defined data protection obligations as the data processor under their contract with us.

Information provided to our website is located on a secured  server behind a firewall.

Your Rights
While LC holds information about you, you will always have the right to:

  • Be informed how LC uses your information (via this privacy statement);
  • Request a copy of the information LC holds about you;
  • Update, amend or rectify the information we hold about you;
  • Change your communication preferences at any time;
  • Ask us to remove your information from our records (subject to applicable legal restrictions);
  • Withdraw consent, wherever it is the basis for LC use of your information;
  • Object to any automated processing we are doing of your information.

If you request a copy of the information LC holds on you we will take reasonable steps to verify your identity before providing it to you, as we do not want to give your personal information to someone else.

You can always contact LC by email or in writing if you have any questions and/or would like to exercise one of the abovementioned rights. Please note that as we cannot guarantee the security of Internet mail, all formal requests to access personal information should be made in writing.

Attention: Privacy Officer
Lymphoma Coalition
8 Stavebank Road N, Unit #401
Mississauga ON L5G 2T4

Website Terms and Conditions
By entering our website, you agree and are bound by the following terms and conditions.

Website Use
You agree to use this site only for lawful purposes, and in a manner which does not infringe the rights, or restrict, or inhibit the use and enjoyment of the site by any third party.

The information contained in this website is available for anyone to use for their own purposes, provided the information is not reproduced on any other website or used for commercial gain.

No part of the website is to be copied, stored, or transmitted in any form without the written permission of LC.

LC stores certain information from your browser using cookies. A cookie is a small text file placed on your computer’s hard drive or memory by a web server, which allows for personalization of certain aspects of your visit to that website. Once you enter our website, you are deemed to have agreed to our cookie policy. By using this website and agreeing to this policy, you consent to the use of cookies in accordance with the terms of this policy.

A cookie in no way gives us access to your computer or any information about you.

We use session ID cookies to confirm that you are logged in and maintain the user identity of registered users during user sessions (for example, to allow you to change web pages or make personalized selections during your visit without having to re-enter your password). These cookies are deleted once you close your browser.

As you interact with the website, such as performing searches and queries, we store this specific usage data to provide you with personalized features such as viewing your most recent searches. These types of data are used to track site usage in an aggregate manner and to improve the services provided on the website.

Cookies can usually be disabled by changing your browser preferences. Your browser usually has documentation on how to disable cookies and web beacons. Note that if you disable cookies, certain features of the Website will not function properly, and you may not be able to register or use your on-line account.

Social Plug-Ins
This website contains links to external social networks such as Facebook, Twitter, Instagram, YouTube and LinkedIn. You may share on social networks the content of our website. User data is not transferred to the operators of such platforms.

Links to Other Web sites from lymphomacoalition.org
LC provides links to other websites that LC believes may be of interest to you. As LC has no control over the content of any of these websites, these links may be updated or deleted as LC deems appropriate.

Please be aware that LC is not responsible for the privacy practices or accuracy of other websites that we link to. We encourage you to read the privacy statements of each and every website that requests personal information from you.

Our website provides general information only, and none of the information contained within our site shall be deemed to constitute medical advice in any way. You should seek appropriate medical advice or guidance from your doctor or healthcare team in relation to any medical condition.

Website Accuracy
We have taken great care to ensure the content of this website is up-to-date and free from errors. However, we cannot guarantee that the information contained in this site will be completely error free, or that this site or the server that makes it available are free of viruses or bugs, or that defects will be identified and rectified. If you notice any defects or errors on our website, we would be grateful if you could notify us by email.

Policy Updates
We reserve the right to update this policy at any time. If a material change is made to the policy, we will e-mail all registered users at the e-mail address provided at time of registration.