LYMPHOMA COALITION
is a worldwide network of patient organisations with a full or partials focus on providing support to those affected by lymphoma, including chronic lymphocytic leukemia.
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Learn more about the findings from the 2024 Global Patient Survey (GPS) on Lymphoma & CLL
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Browse information on lymphoma diagnosis, treatment & survivorship
May is Mental Health Awareness Month, a time to recognise the importance of emotional well-being in maintaining overall health.
For those affected by lymphoma, the psychological impact can be significant. Findings from Lymphoma Coalition’s Global Patient Survey (GPS) on Lymphomas and CLL show that over three-quarters of patients reported personally experiencing in the last year one or more of the following due to their diagnosis: anxiety, body image concerns, changes in relationships, depression, fear, isolation, loss of self-esteem, and/or post-traumatic stress disorder.
As part of a video series created in collaboration with @The Patient Story , patient advocate Johnathan Clark shares his experience with fear of relapse and the emotional realities that often go unspoken. His story reinforces the need to prioritise mental wellbeing as part of holistic care.
Let’s continue working together to ensure that emotional health is prioritised, with better support, access to care, and open conversations between patients, caregivers, and healthcare teams.
🎥 To learn more about the psychological impact of lymphoma and hear more insights, visit: lymphomacoalition.org/psychosocial-effects/ ... See MoreSee Less
Today, on #InternationalNursesDay, Lymphoma Coalition recognizes the critical role nurses play in the lives of those affected by lymphoma and across the broader healthcare system.
This year's theme behind International Council of Nurses (ICN) is, “Our Nurses. Our Future. Caring for nurses strengthens economies,” reminds us that supporting the mental, physical, and emotional well-being of nurses is not only vital for delivering high-quality care, but also for building resilient healthcare systems worldwide.
LC joins the call for greater investment in nurse wellness, safety, and support — because when nurses thrive, entire communities benefit.
#ThankYouNurses #IND2025 #lymsm #ICN ... See MoreSee Less
🧪 National Cancer Research Month is a time to spotlight the importance of advancing research that improves outcomes for people affected by cancer.
According to findings from the most recent Global Patient Survey (GPS) on Lymphomas and CLL:
🔹 77% of respondents were aware that clinical trials can offer better treatment options
🔹 Yet only 13% had ever participated in one
🔹 59% said they would be likely to participate if invited
🔹 Nearly half did not receive information about clinical trials from their doctor
Access to clinical trials is influenced by multiple factors, including geography, subtype, and availability. Some lymphoma subtypes have significantly more trials due to larger patient populations or fewer existing treatments — leaving gaps in access for others.
📣 Ensuring patients receive information about clinical trials and addressing disparities in access is critical to expanding treatment options and improving care.
Learn more about patient-reported experiences at: lymphomacoalition.org/global-patient-survey/
#CancerResearchMonth #lymphoma #CLL #ClinicalTrials #lymphoma #lymphomacoalition #lymsm ... See MoreSee Less
📢 Professional Development Opportunity for Hematology & Oncology Specialists
Lymphoma Coalition is pleased to highlight an upcoming Continuing Medical Education webinar hosted by the Kenya Society of Hematology & Oncology (KESHO) on the Management of Indolent Lymphomas.
🗓️ Date: Thursday, 8 May 2025
🕖 Time: 7:00 – 8:30 PM EAT
💻 Location: Virtual (Zoom)
This session brings together expert voices in lymphoma care and will cover topics such as:
• Dr. Samson Mutanda – Practical approaches in CLL: A case-driven exploration
• Prof. Shahin Sayed – Diagnosis of low-grade lymphomas
• Dr. Matilda Ongondi – CLL treatment algorithms: A practical approach for clinicians
Moderated by Prof. Nicholas Othieno Abinya, a leading figure in medical oncology across East Africa.
This is a valuable opportunity to gain insights into current practices and challenges in managing indolent lymphomas, especially within Sub-Saharan contexts.
🔗 Register now to secure your spot by visiting: us02web.zoom.us/webinar/register/9515994631780/WN_luIAWICuQ4eSV_n2E5w3Ag#/registration
#lymphoma #lymsm #webinar ... See MoreSee Less
🩺 May is Oncology Nursing Month, a time to recognise the dedication, expertise, and compassion of oncology nurses around the world.
For people impacted by cancer, including lymphoma and CLL, oncology nurses are often a critical link between the patient experience and the healthcare system — offering guidance, support, and advocacy throughout every stage of care.
In clinics, hospitals, and research centers around the world, oncology nurses bring expertise, empathy, and unwavering commitment to every patient they encounter. Their tireless efforts make an immeasurable difference in the lives of those affected by cancer, providing comfort, reassurance, and knowledge.
Lymphoma Coalition extends sincere appreciation to oncology nurses everywhere for their vital role in improving the lives of those affected by cancer.
#OncologyNursingMonth #lymphoma #CLL #lymsm ... See MoreSee Less
🧪 May is National Cancer Research Month, an initiative established by the American Association for Cancer Research (AACR) to spotlight the critical role research plays in transforming cancer care.
Lymphoma Coalition is committed to amplifying the patient voice through data. The Global Patient Survey on Lymphomas and CLL (GPS) provides robust, patient-reported insights to help inform healthcare policies, clinical practice, and support services around the world. This research is essential for identifying gaps in care, supporting policy change, and ensuring the voices of patients and care partners are accurately represented.
Throughout the month, Lymphoma Coalition will be sharing key findings from the Global Patient Survey on Lymphomas and CLL (GPS) highlighting the importance of patient centered research.
👉 Explore LC’S latest research and see how patient-reported data is driving meaningful change by visiting lymphomacoalition.org/lymphoma-coalition-research/
#CancerResearchMonth #Lymphoma #CLL #LymphomaCoalition #lymsm ... See MoreSee Less