LYMPHOMA COALITION

Congratulations @ELLyE - Ensemble Leucemie Lymphomes Espoir , a valued member of Lymphoma Coalition, on 20 years of dedicated support, advocacy, and action for people affected by lymphoma, chronic lymphocytic leukaemia, and Waldenström's macroglobulinaemia.

Founded in 2006 as France Lymphome Espoir and strengthened through its 2021 merger with SILLC, ELLyE has grown from a fundamental need to understand the disease, break isolation, and give patients a voice into a recognised and impactful patient organisation.

For two decades, ELLyE has informed, supported, advocated, contributed to research funding, and worked to improve the patient journey and quality of life for patients and their families.

Lymphoma Coalition is proud to recognise this important milestone and celebrate the energy, commitment, and generosity of the ELLyE community. Congratulations on 20 years of impact, and here’s to the future you continue to build together. ... See MoreSee Less

Lymphoma Coalition is pleased to share a new patient-friendly guideline for large B-cell lymphoma (LBCL), developed in collaboration with the European Hematology Association (EHA).

This is the first patient-friendly guideline released by EHA and is based on their medical clinical practice guidelines for the diagnosis, treatment, and follow-up of LBCL.

Clinical guidelines are often written for healthcare professionals and can be difficult for patients and care partners to navigate. This patient-friendly version helps make key information more accessible, supporting people affected by LBCL to better understand their diagnosis, treatment options, follow-up care, and the questions they may want to discuss with their healthcare team.

By working together, EHA and Lymphoma Coalition have helped ensure that evidence-based medical guidance is presented in a clear, patient-focused format that can support informed conversations and shared decision-making throughout the LBCL treatment journey.

Download the guideline today and use it as a trusted resource to better understand LBCL care and prepare for conversations with your healthcare team:
lymphomacoalition.org/diffuse-large-b-cell-lymphoma-dlbcl/

#lymphoma #LBCL #PatientResources ... See MoreSee Less

Big news for the global lymphoma community! 📣

Lymphoma Coalition is officially partnering with @womeninlymphoma (WiL) to connect clinical insights with the patient voice, creating a collaborative space where clinicians and patient advocates can learn from one another to enhance care. 🤝

Our goal is two-fold: We want to help clinicians ground medical advancements with patient priorities, while giving patient organisations the clinical tools to power up their local advocacy and support.
We are so excited to see how this collaboration empowers our local member organisations to support their communities better than ever before. By bringing clinical expertise and the patient voice to the same table, we are navigating the future of care—together.

Coming soon to your inbox and feed:
🎥 Clinician Q&A Series: Expert answers to your community's toughest questions.
🌐 Joint Webinars: Learning opportunities for advocates and doctors alike.
Stay tuned for resources, updates, and more!

To learn more visit: lymphomacoalition.org/lymphoma-coalition-and-women-in-lymphoma-announce-strategic-partnership-to-...

#LYSM #LymphomaCommunity #PatientVoice #BetterTogether #WomenInLymphoma #LymphomaCoalition #HealthEquity ... See MoreSee Less

On #WorldKidneyCancerDay, we are thinking about the 85% of kidney cancer patients who experience emotional challenges, according to the 2025 Global Patient Survey on Kidney Cancer.

To help people reflect on how kidney cancer affects them, we partnered with Dr Cristiane Bergerot (BR) to create the Emotional Wellbeing Check-In interactive PDF for World Kidney Cancer Day.

Available in 13 languages, the downloadable 5-question resource can help start conversations with healthcare teams and loved ones.

Download the Check-In and check on your emotional wellbeing today. www.worldkidneycancerday.org/ #WKCD2026 ... See MoreSee Less