LYMPHOMA COALITION
is a worldwide network of patient organisations with a full or partials focus on providing support to those affected by lymphoma, including chronic lymphocytic leukemia.
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📣 Breaking Barriers, Building Hope – CLL 2025
Lymphoma Coalition is proud to promote this important event hosted by CLL Ireland, in collaboration with CLL Support.
Join them in Belfast for the first shared in-person conference dedicated to CLL patients and care partners, featuring insights from leading haematology experts.
🗓️ Date: 31 May 2025
📍 Venue: The Europa Hotel, Great Victoria Street, Belfast, BT2 7AP
Hear from keynote speaker Dr. Sarah Lawless (Consultant Haematologist, Belfast City Hospital), Laura Croan (Haematology Advanced Nurse Practitioner), and other experts including Dr. Ben Kennedy.
💻 Can’t attend in person? A Zoom livestream will also be available — no registration required.
View the full programme here: clli.ie/wp-content/uploads/2025/04/Belfast-Conference-2025-Programme.pdf?mc_cid=6e7c90994f&mc_eid...
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The CLL Patient Survey is now live! Your voice matters—by sharing your experience, you help researchers and health care professionals better understand what matters most.
Take the survey today and help shape the future of CLL care.
👉 openhealth.questionpro.com/CLL-treatment-preferences-survey
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Answers from the Experts: Q&A - April 2025 ... See MoreSee Less
At ISPOR 2025, Marjorie Morrison, Director of Policy & Advocacy at Lymphoma Coalition, spoke with Dr. Tamás Ágh, Director of Strategy at Syreon Research Institute and Research Associate Professor at the University of Pécs.
Their conversation explored the challenges and opportunities in integrating patient-reported outcomes (PROs) into clinical trial design and decision-making processes.
Both Marjorie and Tamás serve on the ISPOR 2025 Program Committee, contributing their expertise to shape the conference’s focus on advancing health economics and outcomes research.
Watch their full discussion to learn how research and innovation are helping shape more patient-centred systems.
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Lorna Warwick, CEO of Lymphoma Coalition, discusses the abstract presented at ISPOR 2025:
“Patient Reported Adverse Psychosocial Outcomes and Identification of Predictive Factors in Those with Lymphoma or Chronic Lymphocytic Leukemia. An analysis of the Lymphoma Coalition's 2024 Global Patient Survey.”
The findings highlight the emotional and psychological impacts of a lymphoma or CLL diagnosis and the factors that may help identify those at greater risk. A deeper analysis revealed that younger patients are significantly more likely to experience multiple psychosocial challenges, more so than differences seen by gender, diagnosis, or disease stage.
These insights underscore the need for:
• Earlier psychosocial intervention
• Stronger patient-clinician communication
• Broader inclusion of psychosocial measures in clinical trials
Lymphoma Coalition advocates for the routine inclusion of patient-reported outcomes in research and care, to ensure treatment decisions reflect the full experience of those affected by lymphoma and CLL.
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Lymphoma Coalition will be attending ISPOR from 13–16 May in Montréal.
Today, 14 May, Lorna Warwick, CEO of Lymphoma Coalition, will present findings from the 2024 Global Patient Survey (GPS) on Lymphomas and CLL. The presentation, “Patient Reported Adverse Psychosocial Outcomes and Identification of Predictive Factors in Those with Lymphoma or Chronic Lymphocytic Leukemia,” will explore the emotional and psychological toll of a lymphoma or CLL diagnosis, and the key factors that may predict those outcomes and who is most at risk.
Lymphoma Coalition’s presence at ISPOR highlights the importance of including patient-reported data in global health economics and outcomes research.
🔗 Learn more about the programme: www.ispor.org/conferences-education/conferences/upcoming-conferences/ispor-2025
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