LYMPHOMA COALITION

Approximately 1/3 of people reported sleep issues as a side effect of their treatment, according to the 2026 Global Patient Survey on Lymphoma & CLL.

Being unable to fall asleep or lying awake at night, despite feeling tiredness, can be frustrating and lonely.

That is why for World Lymphoma Awareness Day the global lymphoma community is uniting in the Navigating Lymphoma and CLL Together campaign. You can join the No Patient Travels Alone pledge at WorldLymphomaAwarenessDay.org.

Choose one of the challenges you’ve faced during diagnosis, treatment, or survivorship, and share it on social media to show others they are not on this path by themselves.

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‼Bijna iedereen krijgt te maken met bijwerkingen van de behandeling tegen lymfeklierkanker of CLL.

📣Volgens de wereldwijde patiëntenenquête over lymfoom en CLL uit 2026 ondervond 92% van de patiënten lichamelijke bijwerkingen van hun behandeling, waaronder vermoeidheid, haaruitval en slaapstoornissen.
En hoe goed je ook denkt voorbereid te zijn, het is altijd een verwarrende ervaring.

💡Daarom komt de wereldwijde lymfoomgemeenschap ter gelegenheid van de Werelddag voor Lymfoombewustzijn samen in de campagne ‘Navigating Lymphoma and CLL Together’. Je kunt je aansluiten bij de belofte ‘No Patient Travels Alone’ op WorldLymphomaAwarenessDay.org.

👉Kies een van de uitdagingen waarmee je te maken hebt gehad tijdens de diagnose, behandeling of het leven als overlevende, en deel deze op sociale media om anderen te laten zien dat ze niet alleen op dit pad staan.

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September 23 is #RareCancerDay!

Have you or a loved one been affected? Help us raise awareness for individuals with cutaneous lymphomas! Share, like and/or comment to help spread the word and tell others about this rare cancer - cutaneous lymphoma.

#RareCancer #CutaneousLymphoma #CutaneousLymphomaFoundation #CLFoundation ... See MoreSee Less

When it comes back.

Four words no one in the MCL community ever wants to think about. And yet — because mantle cell lymphoma is the disease it is — they are words many of you carry, quietly, every day.

If you are living with MCL, or loving someone who is, please hear this: you are not alone in that thought. Not in the fear. Not in the questions. Not in the search for what happens next.

That is why MCLA exists.

This month's ASK THE EXPERT takes on one of the hardest questions we hear from our community — what to do when MCL returns. Answered by Dr. Michael E. Williams of the University of Virginia, and reviewed for accuracy because when you come to us for answers, they need to be answers you can trust.

Read it here: mantlecellalliance.org/newsletters/2026-08/

And please — do not lose hope. The MCL treatment landscape is changing faster right now than at any point in this disease's history. New FDA approvals. New targeted therapies. New CAR-T options. New combinations that are working for patients whose disease has come back after everything else. We are tracking all of it and translating it into plain language for our community, right here: mantlecellalliance.org/news/

Whether you are newly diagnosed, in remission, in treatment, or facing relapse — MCLA is here for you. That is our promise, and that is what your support makes possible.

Please support our mission to be here for the MCL community — no matter your status, no matter the moment. mantlecellalliance.org/donate/

With deep gratitude to Dr. Michael E. Williams, MD, ScM, FACP, University of Virginia, for reviewing this month's Ask the Expert.

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No matter where they are in the world, people diagnosed with lymphoma and CLL share common challenges related to navigating their treatment that can leave their life feeling turned upside down.

Routines are changed or even disappear. Regular activities, like work or social gatherings, are difficult and even impossible, leading to loneliness and isolation.

Patient organisations, like those in the Lymphoma Coalition network, help guide patients and care partners connect with people who understand what they are going through in support groups and forums.

This World Lymphoma Awareness Day, the global lymphoma community is uniting in the Navigating Lymphoma and CLL Together campaign and calling on people to join the No Patient Travels Alone pledge at WorldLymphomaAwarenessDay.org.

Choose one of the challenges you’ve faced during diagnosis, treatment, or survivorship, and share it on social media to show others they are not on this path by themselves.

#WLAD2026 #lymphoma #CLL ... See MoreSee Less

#MagA limfóma tünetei gyakran a gyakori vírusfertőzések, például az influenza tüneteire hasonlítanak, ezért a betegséget könnyű összetéveszteni más betegséggel.

A 2026-os Limfóma és CLL globális betegfelmérés szerint az érintettek több mint egyharmada (35%) nem kapta meg első alkalommal a helyes diagnózist.

Frusztráló és bizonytalanságot keltő lehet, amikor nem tudod, mi a baj, és úgy érzed, mintha térkép nélkül próbálnál eligazodni.

Az idei Limfóma Világnapon a limfómával élőket képviselő szervezetek világszerte összefognak az „Együtt a limfóma és a CLL kezelésében” kampány keretében, és arra hívják az embereket, hogy csatlakozzanak az „Egy beteg sem marad egyedül” kezdeményezéshez a WorldLymphomaAwarenessDay.org oldalon.

Válassz ki egy olyan kihívást, amellyel a diagnózis, a kezelés vagy a túlélés során szembesültél, és oszd meg a közösségi médiában, hogy megmutasd másoknak: nincsenek egyedül ezen az úton.

#WLAD2026
#LimfómaVilágnap #MagyarRákellenesLiga ... See MoreSee Less