LYMPHOMA COALITION

📅 Save the Date
The Global Patient Survey (GPS) on Lymphomas & CLL opens on 19 January 2026.

Insights from the Survey help inform advocacy that supports:
⬆️ patient experience
⬆️ support and care
⬆️ research
⬆️ health policy

To explore findings from the 2024 Global Patient Survey, visit:
lymphomacoalition.org/global-patient-survey/ ... See MoreSee Less

Lymphoma Coalition is thrilled to welcome five new Associate Members to the global network, expanding our community with organisations from Chile, the Czech Republic, Hong Kong, Poland, and Tanzania.

The new Members are instrumental in expanding the reach and impact of Lymphoma Coalition’s network, bringing valuable expertise and perspectives that enrich our collective mission to advance lymphoma care worldwide.

• Agrupación Oncológica La Voz de Los Pacientes Chile – A patient-led organisation delivering education, support, and advocacy for people affected by lymphoma.

•Diagnóza leukemie Supporting individuals affected by CLL and other blood cancers through education and guidance.

• 癌症資訊網 cancerinformation.com.hk – Providing lymphoma-focused support services and trusted educational resources for patients and families.

• Fundacja Pokonaj Chloniaka – Empowering those affected by lymphoma through education, advocacy, and patient support.

• Feliciana Mshanga Memorial Cancer Foundation – Delivering lymphoma-focused support services and education within local communities.

With these additions, Lymphoma Coalition has grown to a total of 100 Member organisations worldwide, marking an important milestone and reflecting a growing commitment across the global lymphoma community.

LC is proud to welcome you and look forward to working together to amplify patient voices, strengthen collaboration, and advance more equitable, patient-centred care.

To find a Member Organisation near you visit: lymphomacoalition.org/member-organisation/

#LymphomaCoalition #GlobalLymphomaCommunity #patientadvocacy#StrongerTogether #milestone ... See MoreSee Less

🌍💙 World Cancer Day is coming soon — 4 February 2026

This year’s theme, United by Unique, recognises that every cancer experience is different — and that care should reflect the needs of each individual.

By sharing stories, supporting those affected, and advocating for people-centred care, the global cancer community can help drive meaningful change.

👉 Learn more and get involved: www.worldcancerday.org

#WorldCancerDay #UnitedByUnique ... See MoreSee Less

As the year draws to a close, Lymphoma Coalition extends warm wishes to the global lymphoma and CLL community.

Through shared commitment, compassion, and resilience, the global lymphoma community has continued to strengthen connections, advance advocacy, and support research that helps drive meaningful progress for people affected by lymphoma and CLL worldwide. Lymphoma Coalition is grateful for the collaboration, shared learning, and progress made together.

Wishing everyone a positive and fulfilling 2026 and looking forward to a new year, full of exciting and impactful initiatives. ... See MoreSee Less

During the ASH Annual Meeting on December 6 in Orlando, Florida, Natacha Bolaños, Head of Membership & Alliances at Lymphoma Coalition, presented the abstract:
“Evolving Patient-Reported Value of Treatment Attributes in Follicular Lymphoma: Insights from the Lymphoma Coalition 2024 Global Patient Survey.”

The findings illustrate how treatment priorities shift as individuals move through the FL disease journey. While improved survival, remission, and quality of life remain consistently important, those who have experienced relapse place increasing emphasis on relieving treatment burden, managing side effects, and minimising disruption to daily life.

These insights highlight the importance of:
• Adaptive, patient-centred treatment planning that evolves with changing needs
• Recognising that practical considerations become more significant after relapse
• Including robust patient-reported outcomes to ensure treatment decisions reflect lived experience

Lymphoma Coalition remains committed to ensuring patient perspectives are embedded in research, clinical practice, and health policy.

To read the full abstract visit: lymphomacoalition.org/evolving-patient-reported-value-of-treatment-attributes-in-follicular-lymph...

Pictured (L–R): Natacha Bolaños, Head of Membership & Alliances; Kathryn Perry, Head of Communications & Information.

#ASH25 #lymsm #lymphoma ... See MoreSee Less

During the ASH Annual Meeting on December 6 in Orlando, Florida, Lorna Warwick, CEO of Lymphoma Coalition, presented the abstract:

“Variances in Patient-Reported Experiences with Shared Decision-Making by Biological Sex in Patients with DLBCL – An Analysis from the Lymphoma Coalition 2024 Global Patient Survey on Lymphomas and CLL.”

The analysis identified important differences in how individuals experience shared decision-making during their care. While nearly all respondents expressed a desire to be involved in treatment decisions, only half felt adequately included. Male respondents more frequently reported supportive communication and greater involvement, whereas female respondents were more likely to prefer making final decisions themselves but experienced less positive communication from healthcare teams.

These findings highlight the need for:
• Strengthened shared decision-making practices across clinical settings
• Improved clinician–patient communication that actively supports engagement
• Greater awareness of how communication experiences may vary across patient groups

Lymphoma Coalition continues to advocate for equitable, patient-centred communication to ensure all individuals feel informed, supported, and empowered throughout their care.

Read the full abstract at: lymphomacoalition.org/variances-in-patient-reported-experiences-with-shared-decision-making-by-bi...

#lymsm #ASH25 #lymphoma #shareddecisionmaking ... See MoreSee Less