LYMPHOMA COALITION
is a worldwide network of patient organisations with a full or partials focus on providing support to those affected by lymphoma, including chronic lymphocytic leukemia.
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Learn more about the findings from the 2024 Global Patient Survey (GPS) on Lymphoma & CLL
View ReportSearch The Resource Library
Browse information on lymphoma diagnosis, treatment & survivorship
🗣️ Your voice matters.
CLL Ireland is calling on the community to take part in an important new survey shaped by patient voices
By participating, you’re helping to ensure the experiences and needs of people with CLL are better understood and reflected in future care and advocacy efforts.
Take the survey and make your voice count 👉 openhealth.questionpro.com/a/TakeSurvey?tt=CCwhLinnRB8ECHrPeIW9eQ%3D%3D&&fbclid=IwY2xjawLjmdxleHR...
#CLL #PatientVoice #Advocacy #Lymphoma #CLLIreland ... See MoreSee Less
Welcome to the survey on treatment preferences for patients with CLL Click 'start' to continue to the questions
openhealth.questionpro.com
Welcome to the survey on treatment preferences for patients with CLL Click 'start' to continue to the questions📽️ Lorna Warwick, CEO of Lymphoma Coalition recently sat down with, ONCOLife for an in-depth interview on the role of patient advocacy in improving access to CAR T-cell therapy.
In the interview, Lorna highlights key real-world barriers patients face, including delayed referrals, lack of accessible information, and the financial and logistical burdens of receiving care. She underscores the need for culturally sensitive, evidence-based communication and stronger coordination among healthcare stakeholders to make equitable access a reality.
The discussion also explores the ambitious goal of the CAR T Vision initiative: to double the proportion of eligible patients treated with CAR T-cell therapy by 2030 and the vital role global advocacy organisations play in reaching that target.
🔗 Watch the full interview: healthandpharma.net/lorna-warick-patient-advocacy-access-cart-cell-therapy ... See MoreSee Less
🎉 Congratulations to the Lymphoma Research Foundation on 30 years of impact, innovation, and unwavering commitment to people affected by lymphoma.
Lymphoma Coalition is proud to have the Lymphoma Research Foundation as a Member. Together, we can shape a future where everyone affected by lymphoma has access to the support, care, and treatments they deserve.
🎥 Watch The Next 30 Years featuring Dr. Andrew Evens, Scientific Advisory Board Chair, as he reflects on the Foundation’s journey and what lies ahead:
🔗 www.youtube.com/watch?v=TJiVrqTLwW0
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During ICML 2025, Lorna Warwick, CEO of Lymphoma Coalition and member of the CAR T Vision Coalition Steering Committee, was invited to speak with VJHemOnc about the newly launched initiative, highlighting the importance of incorporating the patient perspective to improve access to CAR T-cell therapy.
Its goal is to double access by 2030, with a focus on raising awareness, expanding treatment capacity, and building sustainable funding models.
Watch the full video here: www.youtube.com/watch?v=OopQwayqjZM
To learn more about the CAR T Vision Project visit: cartvision.com/ ... See MoreSee Less
In the second and final part of her interview with The American Journal of Managed Care at #EHA2025, Lorna Warwick, CEO of Lymphoma Coalition, expands on the findings of the abstract: The Effect of Unaddressed Side Effects on Patient-Reported Confidence in Care Plans Among Patients With Lymphoma or Chronic Lymphocytic Leukaemia (CLL).
Drawing from the 2024 Global Patient Survey, Lorna highlights the ongoing challenges patients face when adverse effects are overlooked and the role that clear communication and follow-up can play in improving care.
She discusses:
•The complexity of graft-versus-host disease and how delayed recognition can affect outcomes
•The importance of acknowledging fatigue and following clinical guidelines
•Using simple tools, like rating scales, to better understand impact on quality of life
•Referring patients to trusted external resources when appropriate
🎥 Watch Part 2: www.ajmc.com/view/new-findings-highlight-key-role-of-clinician-communication-in-lymphoma-cll-care...
📺 Missed Part 1? Catch up here: www.ajmc.com/view/unaddressed-side-effects-undermine-patient-confidence-in-lymphoma-cll-care-plan...
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🙏 Thank you to everyone who took part in the survey!
What happens next? Your data will help researchers and advocates improve CLL treatment worldwide.
Stay tuned for what’s to come ❤️.
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