LYMPHOMA COALITION

A new resource has been developed by CLL Advocates Network to help patients, advocates, and healthcare professionals better understand immune challenges in Chronic Lymphocytic Leukaemia (CLL).

“Navigating Immune Challenges in CLL: Infection Prevention and Management” is a practical booklet designed to support people living with CLL who may have weakened immune systems.

Developed by the CLL IC Taskforce, a global working group of clinicians, researchers, advocates, and patients, the publication provides guidance on infection prevention and management, helping individuals understand risks and supporting them in living full and active lives with CLL.

Lymphoma Coalition is proud to contribute to this important initiative, with LC CEO Lorna Warwick serving on the CLL IC Task Force Steering Committee, and Natacha Bolaños, Head, Membership & Alliances, contributing as part of the Task Force’s Advocacy Working Group.


This educational booklet is the first in a series of resources that will be released by the Task Force this year.

Patient advocates and clinicians are encouraged to download the resource and share it with those who may benefit.

🔗 Download the publication: www.clladvocates.net/wp-content/uploads/2026/03/Navigating-Immune-Challenges-in-CLL-Infection-Pre...

This resource is intended to complement – not replace – advice from healthcare teams. Patients should always consult their healthcare provider to develop a personalised plan for preventing and managing infections.

#CLL #PatientAdvocacy #LymphomaCommunity #CLLCommunit ... See MoreSee Less

Ireland is close, help us reach 100 voices.

Ireland currently has 95 participants in the Global Lymphoma & CLL Patient and Care Partner Survey.

A big thanks to all who have responded so far.

If we reach 100 responses, Ireland will receive a country-specific report highlighting the experiences of people affected here.

Capturing the lived experience of patients and care partners helps strengthen advocacy by:

• Identifying gaps in diagnosis, treatment access and support

• Providing evidence to influence healthcare policy

• Highlighting the real impact of living with CLL and lymphoma

• Driving improvements in care and outcomes

If you are living with CLL or lymphoma, or care for someone who is, please consider taking part.

Just as importantly, please share the survey with your networks so we can reach and exceed 100 Irish responses.

Every voice helps drive change.

Link to the survey:

picker.fra1.qualtrics.com/jfe/form/SV_8nYLDY1XCnK6XQO

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📝 È disponibile il 10° GPS 2026 – Sondaggio Globale sui Pazienti con Linfoma e Leucemia Linfatica Cronica (LLC) promosso dalla Lymphoma Coalition.

Ad oggi, dall’Italia hanno già partecipato oltre 170 persone tra pazienti e caregiver. Un risultato importante, ma possiamo fare di più.

Ogni esperienza condivisa contribuisce a costruire una fotografia reale dei bisogni, delle difficoltà e delle priorità di chi convive con un linfoma o con la LLC. I dati raccolti aiutano a orientare ricerca, politiche sanitarie e servizi di supporto.

Se sei un paziente o un caregiver, dedica pochi minuti a compilare il sondaggio e fai sentire la tua voce.

👉 Partecipa qui: bit.ly/LymphomaCoalitionGPS2026 ... See MoreSee Less

Možná si myslíte, že nás vaše názory nezajímají, pokud jste se již zúčastnili předchozího průzkumu. Každé dva roky se znovu ptáme lidí na jejich názory. To nám umožňuje sledovat klinické trendy v průběhu času, což může pomoci dalším pacientům a pečovatelům, jako jste vy.

I když jste již GPS vyplnili, doufáme, že si najdete čas a vyplníte jej znovu. Průzkum je otevřený do konce března.

bit.ly/LymphomaCoalitionGPS2026 ... See MoreSee Less

As GCCN members, we are proud to have contributed to Close the Loop, which exposes how funding pressure affects cancer patient organisations across all settings, but not in the same way.
The report shows that while organisations in low, medium and high-HDI countries often face severe resource shortages that directly limit patient support, organisations in very high-HDI countries are also operating under sustained financial strain. In both contexts, funding gaps translate into reduced capacity, difficult trade-offs, and unmet patient needs.

These findings challenge the assumption that stronger health systems automatically mean stronger patient organisations and underline the need for more equitable, long-term investment in patient-led support worldwide.

🔗 Read the report: worldbladdercancer.org/wp-content/uploads/2026/02/GCCN-Report-2026.pdf
#closetheloop #canceradvocacy #GlobalHealth ... See MoreSee Less

Jūsų istorija yra labai svarbi. Dalindamiesi savo patirtimi GPS apklausoje, pacientai ir artimieji suteikia LC labai svarbią informaciją. LC ne tik renka duomenis, bet ir naudoja gautas žinias konkretiems pokyčiams kurti ir įgyvendinti, kurie galiausiai pagerina žmonių, kuriems diagnozuota limfoma ir LLL, priežiūros procesą ir patirtį, darant poveikį tiek pasauliniu, tiek vietiniu mastu.

• Geresnės paramos ir priežiūros. formavimas
• Pažangesni moksliniai tyrimai.
• Įrodymais pagrįsta politika.

Ar padėsite daryti įtaką, dalindamiesi savo įžvalgomis ir patirtimi? Prašome skirti laiko ir užpildyti GPS šiandien.

APKLAUSA: bit.ly/LymphomaCoalitionGPS2026 ... See MoreSee Less